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Epilepsy On Our Terms: Stories By Children With Seizures And Their Parents (The Brainstorm Series)

This enlightening book presents the firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends. Reveals the terror, uncertainty, and frustration felt by children and parents after an initial seizure or a diagnosis of epilepsy. Documents the ongoing trials, tribulations and triumphs of coping with seizures, medication schedules and side effects, health care providers and hospitals, schoolmates, siblings, relatives and friends. These accounts provide realistic insights into the myriad issues encountered in living with childhood epilepsy. The book also includes a straightforward medical discussion of childhood seizures, written in layperson's terms by Dr. Pellock; a glossary of medical terms; and a guide for schoolteachers and parents written by William Murphy, the Executive Director of the Epilepsy Association of Massachusetts. Appendices provide a directory of Epilepsy Foundation of America affiliates; a list of recommended books, publications, and videotapes; and information about the Epilepsy Foundation of America's Winning Kids program.

Series: The Brainstorm Series

Paperback: 192 pages

Publisher: Oxford University Press; 1 edition (October 17, 2007)

Language: English

ISBN-10: 0195330900

ISBN-13: 978-0195330908

Product Dimensions: 9.1 x 0.8 x 6 inches

Shipping Weight: 11.2 ounces (View shipping rates and policies)

Average Customer Review: 4.0 out of 5 stars  See all reviews (4 customer reviews)

Best Sellers Rank: #2,646,833 in Books (See Top 100 in Books) #35 in Books > Health, Fitness & Dieting > Children's Health > Epilepsy #290 in Books > Health, Fitness & Dieting > Diseases & Physical Ailments > Epilepsy #1584 in Books > Health, Fitness & Dieting > Diseases & Physical Ailments > Nervous System

EPILEPSY ON OUR TERMS is a book I wish I had when I was first diagnosed with epilepsy in '75. The stories brought back so many memories, some funny, others frustrating. I wrote a thankful review to all the contributing doctors and also sent them my story. I hope it helps them, or one of their patients. Epilepsy is still a misunderstood and avoided medical conditon among the public. More books like this need to be written. First-hand knowledge is always helpful to the patient/family dealing with medical issues. This book would make a great handout to the newly diagnosed. It would also make great reading for a medical class discussion group. I'll have to buy another copy cause I did pass it on to a young person with epilepsy.angie

My son was recently diagnosed with epilepsy, so I bought many books on the topic. I was especially interested in this one as I was hoping to understand epilepsy from his perspective since he's not quite old enough to verbalize his experience. We are at the very beginning of our journey with epilepsy, and this book really made me afraid of what is ahead of us medically and socially. I thought this was a grim read. If you're looking for information about epilepsy, I would recommend "Seizures and Epilepsy in Childhood: A Guide."

For parents who are fighting the battle of epilepsy with their children, this book lets you know you are not alone. As a mother of a child who has uncontrolled seizures, it is inspiring to read these stories from children.It is the closest that I can get to know how my child feels when having a seizure.These children are so brave, and don't let epilepsy get the best of them.It is a truly inspiring book!

I read some of the other reviews and I do have to say this..... If you want to shelter your child and not tell them the reality of seizures and epilepsy, then don't get this book. There are stories from parents and the children. It does not hide the truth and that is why I bought it. You have to be honest with your children about their condition and this book does help. The stories from the kids are why I bought it for my 10 yr old. I wanted her to know that there are other kids out there like her. I 100% recommend this book. But be warned - it's not a happy, fluffy book - it's reality.

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